This article perfectly describes the everyday frustrations of trying to navigate systems purportedly there to "help" individuals with significant cognitive impairment.
As both a mom and a "case manager", I could underline all the salient points: it's too scattered, too confusing (if these two caregivers-a pediatric nurse specialist and a tenured professor of health policy can't do it, who can?), and too subject to error.
Medicaid obviously remains the life-sustaining key to most services for people like Vincent.
Do you wonder why some of us moms-and case managers-are wondering how much more Congress will cut Medicaid under the belief that it is too lavish?
There are lots of Vincents out there. They are living substandard lives under the radar of your health care and disability "services", and when their elderly parents die, someone somewhere is going to be trying to figure out how to bring Vincent home.
Read this article.